Driving In The Dark

 I woke at 6:30 and started the day. A quick cup of coffee to drink while I sorted pills for the next two weeks, then I showered and dressed before I woke the man who would be denied food and drink. I fed and watered the animals while he dressed, then we headed out for the hospital in Atlanta. Siri assured us that it should only take a couple of hours, but we left early just in case.

HeWho is never without a drink close by (used to be Diet Coke before the nurse practitioner confirmed that his wife was right about the sodium content). He normally has flavored water or ice tea to sip on all day. He was a little irritable. We drove the route that took us through Helen from Hiawassee. The road through the mountains is treacherous with only two lanes and crazy curves at 20 mph. We encountered road repair twice and had to wait. The switch backs and the steep drop on the side of the road makes me nervous. When we went this way in the big motorhome, we could smell the brakes burning!!

We made it in plenty of time and only got lost 4 times in the hospital. The people manning the information desks seem to be misinformed! When we reached the correct destination, I answered all the questions while he signed all the appropiate documents. He doesn't hear well in the best of circumstances, but add some masks and plexi barriers and you would have to shout for him to understand. They took him to prep and assured me they would come get me to sit with him while he waited to go into surgery. I was thirsty and hungry, but I wouldn't eat in the car and tempt him. I am considerate like that.

I sat with him long past the 1:30 appointed time. He was getting pretty grouchy by the time they took him at 3:00. The nursing staff was excellent and when I explained the drive home and my night blindness they immediately set out to remedy the situation. They decided I would need to leave at 6:30 to get home as it was turning dark ..... with or without him. 

There was Panera Bread within the hospital and I paid $11 for a sandwich! I am cheap, as you all know. The sandwich was good, but anything would have been good by then! I texted relatives and ate half the sandwich, then headed back to wait. I was expecting to wait for at least 2 hours. Both main arteries in his legs are blocked, causing pain and numbness. He has been complaining for several years. When they attempted to do a cardiac bypass, they could find no viable vessels in his legs and then decided to attempt the stent procedure that ended with 5 stents in one vessel. Then the Corona Virus interrupted the world. His recovery from the stent procedure and his heart attack was unremarkable, medically speaking. As far as being his wife and care taker I found lots to remark about! 

After his heart attack, I accompanied him to every appointment. My heart attack was very minor as far as heart muscle damage went and I recovered quickly. We used the same cardiologist and usually had our appointments together. My appointment was generally focused on him. I cannot count the times I mentioned the leg pain and numbness that he was experiencing. The only one who listened was our family practice nurse practitioner. We went through everything he consumed, as well as his numerous medications and the only culprit we found was the Lipitor. He had been on Lipitor years ago and complained about the weakness in his legs and our doctor switched him to Crestor. He noticed a definite change after a month, so I assumed it was the culprit again.

The cardiologist was adamnment about the Lipitor and had him on the highest dosage. He also prescribed it for me because my cholesterol was "borderline". I told him I would not fill it or take it, that it had too many side affects. We argued and he would not prescribe a different statin. Our nurse practitioner agreed with me. It was like he had a drug protocal for cardiac patients and would not deviate from it. I just started taking fish oil instead and it seemed to be working fine. Nevermind that the lowest dose of Lipitor is 10mg and he wanted me to take 40mg and my cholesterol levels did not warrant that dosage. I am known to do my research and advocate for both of us. I do not back down easily. I am more than happy to engage in an intelligent arguement and I will listen to your reasoning, as long as you will listen to mine and we can compromise. That being said, you have to prove your side of the issue and not assume that I am just the lowly patient and must comply with your demands, it just will not happen.

I had just settled in a comfy chair and pulled another over for my feet to listen to an audio book and answer the texts from family when they came out to tell me that the procedure was done and I could come back to the recovery room. Trying to be optimistic, I said that I assumed everything went well to be done so quickly. HeWho scowled at me on the stretcher and told me that it did not. I was afraid of that, but I wasn't going to say so. Based on the findings the nurse practitioner for Dr. Ross, the vascular surgeon, went over with us in the office, I already assumed that the catheter procedure was not going to work and that he would need bypass surgery in at least one leg. He had to have a second contrast study done because of the calcification in his right leg made it hard to see everything.

Up until this day we had yet to meet Dr. Ross. His nurse practitioner out in satellite offices is very impressive and I liked her tremendously, so I figured he must good if he hired her! We met his surgical nurse practitioner while we waited and she was also impressive. I am happy to say that I really like this doctor. He came in and talked with us to explain his findings from the procedure. Both legs will require substantial repair and the surgery is invasive, but will be more sustainable in the long run. He also told the staff to release him earlier than normal so that I could drive safely home. Because I am a nurse and know what to look for, his nurse told him she felt comfortable with the early release.

Now we are waiting to hear from his nurse for a surgical date. She is taking our distance into consideration. He will be admitted for this, so I will be going back home alone after the surgery and then back in a day or two to pick him up. Then we will wait about a month and do it all over again on the other leg. Looks like we have the next few months planned!

I still wonder why, after ascertaining that his veins were in bad shape and his complaints about his leg pain, the cardiologist in St. Louis did not order testing for his arteries. The cardiologist here picked right up on the first visit. I was explaining that I, not his doctor, took the Lipitor off his medication schedule after his legs completely gave way one day at the kampground. She looked at his numbers from the blood work and said that Lipitor would not have been her first choice for him and put him on Crestor, making me want to run through the streets shouting "I WAS RIGHT!!"

It is nice to be heard. But since retiring, it seems that all we do is visit the doctors' offices and the grocery store. I am hoping for a very quiet stress free winter. The only excitement I want is visits from our families. I plan to hibernate on the side of the mountain and hook a rug or two!

Comments

  1. Boy, I know about those trips to doctors: I went and got my annual Medicare checkup today. Yesterday Cliff went to the ear doctor. Tomorrow nothing, but Cliff goes back to the ear doctor Friday to see about getting a cochlear implant. It never seems to stop for him. He has a doctor for his asthma and a urologist he's had since the prostate cancer, and now an ear doctor. Oh yes, and his cardiologist, from 2006 when he had a four-way bypass. Isn't it fun to get older?

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    1. You know what they say about the best laid plans. Aging does suck, but the alternative would be dying, so .... Caring for a man who hears only what he wants to hear is great fun! Even when his hearing was great he heard only those words that suited him. Next week is another trip to the Family doctor to get the results of our quarterly blood tests. We just can't seem to have an entire month without something related to a medical visit or procedure!

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  2. Yes, you are quite considerate. You deserved that $11 sandwich! And a special award for driving HeWho to his appointment, and making sure he got the treatment that was right for HIM.

    I agree with your suspicions of that doc following a drug protocol. My own favorite doctor, a former Army doctor, left our clinic where he'd been for years, to go work at the Veterans Administration, because of all the protocols for drugs and tests. I'm sure they had their own protocols at the VA, but different from that giant BJC system that bought out our local hospital.

    My doc wouldn't let me off that devil drug Xarelto! It was six months after my pulmonary embolisms, and Xarelto made every joint hurt so much that I couldn't sleep. Doc said, "But Val, it's the standard of care. One year on Xarelto." Huh! It was a new drug at that time. So I don't know how many people had spent a year on it already. I had to see a cardiopulmonary specialist in St. Louis, and present my case to him (I brought printouts of a study!) as to why I should be able to take a full strength aspirin a day instead of Xarelto with all its side effects, including death from unstoppable bleeding! He was a very reasonable man, of Asian heritage, and listened and agreed to my proposal. I guess he was at a level where he could get away with breaking protocol.

    Hope you and HeWho have all this behind you by the time winter rolls in!

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    1. I ALWAYS argue about new drugs. Give the old tried and true ones to me. Of course, I would consider a new drug if I had a terminal disease. My Dad told his doctors to try whatever they wanted when he had cancer. Unfortunately they were no new regimens for stomach cancer. More people need to educate themselves about their medical conditions. Seems like a new drug comes out, everybody is prescribed and a few years later an attorney is contacting them (or their survivors) about a class action against that drug company.

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  3. I echo Val in saying I hope you both have all this behind you when winter comes along and you can spend the days hibernating.

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    1. I wish I felt optimistic about that! Had HeWho listened to his wife, we wold have retired 20 years ago. Of course, hind sight is 20/20 and we could have still lost it all after the stock market had the hissy fit following 9-11. No do overs, so it is what it is. Thank goodness I talked him out of living in an RV and roaming from place to place!

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  4. I would never have gone back to the doctor that insisted you or your husband take a drug you knew to be wrong. I'm glad you found one that you like and treats their patients with respect. As my husband says, you know what they call doctors who graduated at the bottom of their class...doctor.

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